Willowbrook Mile

#9

“Institute for Basic Research in Developmental Disabilities (IBR)”

With the opening of its first research laboratories in 1968, The Institute for Basic Research in Developmental Disabilities (IBR) became the first largescale institute in the world with a specific mandate to conduct basic and clinical research into the causes, treatment, and prevention of developmental disabilities. The rights of all individuals who participate in IBR’s research studies are protected to the utmost. In contrast, the rights of some Willowbrook residents who participated in research were violated. As a result of reforms initiated in response to research such as the Hepatitis Studies conducted at Willowbrook and other studies in the United States, and indeed, the world, today’s concept of informed consent protects the human rights of research subjects with very strict guidelines.